Showing posts with label Celiac. Show all posts
Showing posts with label Celiac. Show all posts

Saturday, February 17, 2024

May is Coeliac Awareness Month

The month of May is Coeliac Awareness Month.


Coeliac Disease and the gluten free diet

What is Coeliac Disease?

Coeliac Disease ('Celiac' in the USA and Canada) is a lifelong autoimmune condition where the immune system mistakenly attacks healthy tissue. In Coeliac Disease the immune system mistakes substances found inside gluten as a threat to the body and attacks them. This can trigger a number of painful, horrible, stressful and uncomfortable symptoms.

In the UK it is estimated that 1 in 100 people have the condition.

Coeliac Awareness Month 2024

This year Coeliac UK - the charity for people with Coeliac Disease - is on a mission to find the 1 in 100 people in the UK with coeliac disease and help guide them on the road to recovery.

Visit the Coeliac UK website and Coeliac Awareness Month page for more information.

Living a gluten free life

Having suffered from a range of symptoms for around ten years I finally received a positive diagnosis of Coeliac Disease following some 'interesting' and in-depth tests and procedures in 2008! It came as a relief to finally have a name for the mysterious cause of my illnesses and ailments, but at the time I was only given a brief summary and told that I'd have to "cut down on bread and beer". It was only later when I met with a gastroenterologist and a dietitian that I found out that the only treatment for people with Coeliac Disease is a strict, life-long gluten free diet.

My life as a Coeliac in LEGO form
My life as a Coeliac in LEGO form

You can read more about my gluten free journey in this case study on the This Is MedTech website - "When eating gluten-free isn’t a choice".

My Coeliacversary

This year marks my 16th year as a Coeliac! Time flies eh.

How should I celebrate my Coeliacversary this year...?

Monday, June 13, 2022

Fourteen years gluten free

Today marks my fourteen year Coeliac Anniversary - my Coeliacversary.


Coeliac disease and gluten free

I was diagnosed with Coeliac Disease fourteen years ago today. And so began my journey into the gluten free world.

What is Coeliac Disease?


Coeliac Disease is a lifelong autoimmune condition, where the immune system mistakenly attacks healthy tissue. In Coeliac Disease the immune system mistakes substances found inside gluten as a threat to the body and attacks them. This can trigger a number of painful, horrible, stressful and uncomfortable symptoms.

In the UK it's estimated that 1 in 100 people have the condition.

Living a gluten free life


Richard Gottfried - Coeliac Crazy Golfer
I'm still alive and kicking as I've avoided gluten (my Kryptonite) since 2008

Having suffered from a range of symptoms for around ten years I finally received a positive diagnosis of Coeliac Disease following some 'interesting' and in-depth tests and procedures in 2008. It came as a relief to finally have a name for the mysterious cause of my illnesses and ailments, but at the time I was only given a brief summary and told that I'd have to "cut down on bread and beer". It was only later when I met with a Gastroenterologist and a dietitian that I found out that the only treatment for people with Coeliac Disease is a strict, life-long gluten free diet.

My life as a Coeliac in LEGO form
My life as a Coeliac in LEGO form

While having a life-long condition such as Coeliac Disease can be a pain - and horrible if I 'get glutened' - having the disease has had some positives. I've met great people since my diagnosis and have made some brilliant friends who I've met through Coeliac groups. I've also blogged a lot about living with the condition and the great free from food and drink I've found since 2008.

Thank you to everyone for their support, tips, help and recommendations over the years. It's very much appreciated.

For more information on Coeliac Disease visit the NHS Choices and Coeliac UK websites.

Monday, May 02, 2022

Celiac Awareness Month

May is Celiac Awareness Month in the USA.


Celiac Awareness Month

Check out Beyond Celiac website for more information.



Living a gluten free life

Having suffered from a range of symptoms for around ten years I finally received a positive diagnosis of Coeliac Disease following some 'interesting' and in-depth tests and procedures in 2008. It came as a relief to finally have a name for the mysterious cause of my illnesses and ailments, but at the time I was only given a brief summary and told that I'd have to "cut down on bread and beer". It was only later when I met with a Gastroenterologist and a dietitian that I found out that the only treatment for people with Coeliac Disease is a strict, life-long gluten free diet.

While having a life-long condition such as Coeliac Disease can be a pain - and horrible if I 'get glutened' - having the disease has had some positives. I've met great people since my diagnosis and have made some brilliant friends who I've met through Coeliac groups. I've also blogged a lot about living with the condition and the great 'free from' food & drink I've found since 2008.

Sunday, June 13, 2021

Thirteen years gluten free

Today marks my thirteen year Coeliac Anniversary - my Coeliacversary.


Coeliac disease and gluten free

I was diagnosed with Coeliac Disease thirteen years ago today. And so began my journey into the gluten free world.

What is Coeliac Disease?


Coeliac Disease is a lifelong autoimmune condition, where the immune system mistakenly attacks healthy tissue. In Coeliac Disease the immune system mistakes substances found inside gluten as a threat to the body and attacks them. This can trigger a number of painful, horrible, stressful and uncomfortable symptoms.

In the UK it's estimated that 1 in 100 people have the condition.

Living a gluten free life


Having suffered from a range of symptoms for around ten years I finally received a positive diagnosis of Coeliac Disease following some 'interesting' and in-depth tests and procedures in 2008. It came as a relief to finally have a name for the mysterious cause of my illnesses and ailments, but at the time I was only given a brief summary and told that I'd have to "cut down on bread and beer". It was only later when I met with a Gastroenterologist and a dietitian that I found out that the only treatment for people with Coeliac Disease is a strict, life-long gluten free diet.

My life as a Coeliac in LEGO form
My life as a Coeliac in LEGO form

While having a life-long condition such as Coeliac Disease can be a pain - and horrible if I 'get glutened' - having the disease has had some positives. I've met great people since my diagnosis and have made some brilliant friends who I've met through Coeliac groups. I've also blogged a lot about living with the condition and the great free from food and drink I've found since 2008.

Thank you to everyone for their support, tips, help and recommendations over the years. It's been very much appreciated.

For more information on Coeliac Disease visit the NHS Choices and Coeliac UK websites.

Sunday, May 16, 2021

International Coeliac Day

Today is International Coeliac Day.


International Coeliac Day

About Coeliac Disease

Coeliac Disease (Celiac in the US and Canada) is a lifelong autoimmune disease caused by intolerance to gluten and the only treatment is to adhere to a strict lifelong gluten free diet.

In the UK it's estimated that 1 in 100 people have the condition.

Living a gluten free life

Having suffered from a range of symptoms for around ten years I finally received a positive diagnosis of Coeliac Disease following some 'interesting' and in-depth tests and procedures in 2008. It came as a relief to finally have a name for the mysterious cause of my illnesses and ailments, but at the time I was only given a brief summary and told that I'd have to "cut down on bread and beer". It was only later when I met with a Gastroenterologist and a dietitian that I found out that the only treatment for people with Coeliac Disease is a strict, life-long gluten free diet.

Coeliac Awareness

The month of May is Celiac Awareness Month and this week has been Coeliac UK Awareness Week.

Saturday, May 01, 2021

May is Celiac Awareness Month

This month is Celiac Awareness Month.


Celiac Awareness Month

Coeliac Disease (Celiac in the US and Canada) is a lifelong autoimmune disease caused by intolerance to gluten and the only treatment is to adhere to a strict lifelong gluten free diet.

In the UK it's estimated that 1 in 100 people have the condition, in the USA the figure is 1 in 133.

Visit the Beyond Celiac website for more information.

Living a gluten free life

Having suffered from a range of symptoms for around ten years I finally received a positive diagnosis of Coeliac Disease following some 'interesting' and in-depth tests and procedures in 2008. It came as a relief to finally have a name for the mysterious cause of my illnesses and ailments, but at the time I was only given a brief summary and told that I'd have to "cut down on bread and beer". It was only later when I met with a Gastroenterologist and a dietitian that I found out that the only treatment for people with Coeliac Disease is a strict, life-long gluten free diet.

Coeliac awareness dates

The month of May is Celiac Awareness Month, International Coeliac Day is on Sunday 16th May and Coeliac UK Awareness Week runs from the 10th to the 16th May.

Saturday, June 13, 2020

Twelve years gluten free

Today marks my twelve year Coeliac Anniversary - my Coeliacversary.


Coeliac disease and gluten free

Twelve years ago today I was diagnosed with Coeliac Disease and began my journey into the gluten free world.

What is Coeliac Disease?


Coeliac Disease is a lifelong autoimmune condition, where the immune system mistakenly attacks healthy tissue. In Coeliac Disease the immune system mistakes substances found inside gluten as a threat to the body and attacks them. This can trigger a number of painful, horrible, stressful and uncomfortable symptoms.

In the UK it's estimated that 1 in 100 people have the condition.

Living a gluten free life


Having suffered from a range of symptoms for around ten years I finally received a positive diagnosis of Coeliac Disease following some 'interesting' and in-depth tests and procedures in 2008. It came as a relief to finally have a name for the mysterious cause of my illnesses and ailments, but at the time I was only given a brief summary and told that I'd have to "cut down on bread and beer". It was only later when I met with a Gastroenterologist and a dietitian that I found out that the only treatment for people with Coeliac Disease is a strict, life-long gluten free diet.

My life as a Coeliac in LEGO form
My life as a Coeliac in LEGO form

While having a life-long condition such as Coeliac Disease can be a pain - and horrible if I 'get glutened' - having the disease has had some positives. I've met great people since my diagnosis and have made some brilliant friends who I've met through Coeliac groups. I've also blogged a lot about living with the condition and the great free from food and drink I've found since 2008.


Thank you to everyone for their support, tips, help and recommendations over the years. It's been very much appreciated.

For more information on Coeliac Disease check out the NHS Choices and Coeliac UK websites.

Saturday, May 16, 2020

International Coeliac Day

Today is International Coeliac Day.


Today is International Coeliac Day

Other important dates for your gluten free diary:

  • May is Celiac Awareness Month.
  • In the UK Coeliac Awareness Week 2020 (aka Gluten Free Community Week) runs from the 11th to the 17th May.
  • International Coeliac Day is on Saturday 16th May.
  • National Celiac Disease Awareness Day is on the 13th September this year.
  • The week before Christmas is Gluten Free Baking Week.


About Coeliac Disease


Coeliac Disease (Celiac in the US and Canada) is a lifelong autoimmune disease caused by intolerance to gluten and the only treatment is to adhere to a strict lifelong gluten free diet.

In the UK it's estimated that 1 in 100 people have the condition.

Monday, May 11, 2020

Coeliac Awareness Week, aka Gluten Free Community Week


This week is UK Coeliac Awareness Week, aka Gluten Free Community Week.



This week is Coeliac Awareness Week, aka Gluten Free Community Week

Gluten Free Community Week runs from the 11th to the 17th May.

Other important dates for your gluten free diary:


  • May is Celiac Awareness Month.
  • International Coeliac Day is on Saturday 16th May.
  • National Celiac Disease Awareness Day is on the 13th September this year.
  • The week before Christmas is Gluten Free Baking Week.


About Coeliac Disease


Coeliac Disease (Celiac in the US and Canada) is a lifelong autoimmune disease caused by intolerance to gluten and the only treatment is to adhere to a strict lifelong gluten free diet.

In the UK it's estimated that 1 in 100 people have the condition.

My Coeliacversary


I was diagnosed with Coeliac Disease in June 2008.

Having suffered from a range of symptoms for around ten years I finally received a positive diagnosis of Coeliac Disease following some 'interesting' and in-depth tests and procedures in 2008. It came as a relief to finally have a name for the mysterious cause of my illnesses and ailments, but at the time I was only given a brief summary and told that I'd have to "cut down on bread and beer". It was only later when I met with a Gastroenterologist and a dietitian that I found out that the only treatment for people with Coeliac Disease is a strict, life-long gluten free diet.

While having a life-long condition such as Coeliac Disease can be a pain - and horrible if I 'get glutened' - having the disease has had some positives. I've met great people since my diagnosis and have made some brilliant friends who I've met through Coeliac groups. I've also blogged a lot about living with the condition and the great free from food and drink I've found since 2008.

Friday, May 01, 2020

May is Celiac Awareness Month

This month is Celiac Awareness Month.


Coeliac Awareness

Coeliac Disease (Celiac in the US and Canada) is a lifelong autoimmune disease caused by intolerance to gluten and the only treatment is to adhere to a strict lifelong gluten free diet.


In the UK it's estimated that 1 in 100 people have the condition, in the USA the figure is 1 in 133.


It's important to know and remember that Celiac/Coeliac is NOT an allergy, it's NOT a preference, it's NOT a fad, it's NOT a diet, it's NOT an intolerance, it's NOT a choice - it's an AUTOIMMUNE DISEASE.

Visit the Beyond Celiac website for more information.

In the UK Coeliac Awareness Week 2020 (aka Gluten Free Community Week) runs from the 11th to the 17th May.

International Coeliac Day is on Saturday 16th May.

National Celiac Disease Awareness Day is on the 13th September this year.

The week before Christmas is Gluten Free Baking Week.

This year marks my 12th year living gluten free. I was diagnosed with Coeliac Disease in June 2008.

Check out my gluten free, celiac and coeliac disease blog posts.

Luckily I've found some 100% gluten free places that are safe for people with Coeliac Disease. I'm really looking forward to visiting them again once the coronavirus pandemic is over.

Wednesday, April 08, 2020

Dates for your (gluten free) diary

National Coeliac awareness days, weeks and months in 2020.


Coeliac Disease Awareness

Upcoming important dates for your (gluten free) diary:

  • May is Celiac Awareness Month.
  • In the UK Coeliac Awareness Week 2020 (aka Gluten Free Community Week) runs from the 11th to the 17th May.
  • International Coeliac Day is on Saturday 16th May.
  • National Celiac Disease Awareness Day is on the 13th September this year.
  • The week before Christmas is Gluten Free Baking Week.


Coeliac Disease (Celiac in the US and Canada) is a lifelong autoimmune disease caused by intolerance to gluten and the only treatment is to adhere to a strict lifelong gluten free diet.

In the UK it's estimated that 1 in 100 people have the condition.

Wednesday, January 29, 2020

When eating gluten-free isn’t a choice - This Is MedTech

When eating gluten-free isn’t a choice


Champion miniature golfer Richard Gottfried spent years feeling ill before he discovered that he had coeliac disease and gradually regained his health.


Believing he had a common digestive disorder called irritable bowel syndrome (IBS), Richard took IBS medication to ease his symptoms, which included bloating, vomiting, diarrhoea and severe lethargy. However, he was unaware of the real cause: gluten-containing foods. When he continued to feel ill, he thought he just had to put up with it. “When I look back, I can’t believe I lived so long eating what I did,” remembers Richard, who would often avoid food altogether because he didn’t want to be sick.

“I was so thin but bloated, so I looked like I’d been eating all day long. Often I would only have a bowl of corn flakes for breakfast, be violently ill, and then not eat anything else for the rest of the day,” he tells This Is MedTech. After several years Richard’s condition became progressively worse until he felt so ill that he went back to the doctor.

“I had a thorough check, including a blood test, an endoscopy and a sigmoidoscopy,” he says. This led to a diagnosis of coeliac disease as well as a wheat allergy. “I was referred to a gastroenterologist and a dietician, and that’s when I finally began to understand the impact and implications of my diagnosis.”

I need to be gluten free, not a glutton (or any number of other misspellings of gluten)

According to Coeliac UK, coeliac (pronounced see-liac) disease affects at least 1 in 100 people in the UK and Europe, but only 30% of people with the condition are currently clinically diagnosed. It’s a genetic autoimmune disease that’s triggered by eating gluten, a protein found in wheat, barley and rye. It’s not a food allergy or intolerance, or IBS. For people with coeliac disease, eating gluten damages the lining of the gut, which prevents normal digestion and absorption of food. Serious health problems can be associated with coeliac disease including osteoporosis, cancer of the small bowel and increased risk of other autoimmune diseases.

There is no cure for the condition and the only treatment is a strict gluten-free diet for life. “It can be a real drain both mentally and physically, but you have to stay as positive as possible,” comments Richard, who hasn’t wavered from his gluten-free regime in the decade since his diagnosis. “Once you’re on a gluten-free diet, it can take years for your body to recover. I’ve only just started putting on weight again in the past couple of years. Still, there’s always a risk that you’ll be ‘glutened’ which can set you back days or weeks.”

Richard says Coeliac UK and his local coeliac group were extremely helpful, especially in the beginning. “Back then, there weren’t really gluten-free options in supermarkets. The coeliac groups gave me tips on gluten-free food, cooking, storage, places to shop, etc. They also held dinners and other events, and I made some good friends. We still go out together.”

There are only a handful of 100% gluten-free restaurants in the UK, so one of Richard’s aims is to increase that number by talking about it on his blog. “We recently went out to a 100% gluten-free pub in Cambridgeshire, and it was so nice to be able to go out and feel normal.”

Having a superb 100% gluten free meal at The Oxford Place in Leeds
Having a superb 100% gluten free meal at The Oxford Place in Leeds

He also believes it’s important to raise awareness about coeliac disease by talking openly about it, as people can be embarrassed to discuss their symptoms. “You’ll never get well if you don’t go to the doctor,” he points out. “Diagnosis is the first step. Once you know what’s wrong, you can start tackling it.”

Interview by Karen Finn for This Is MedTech, January 2019.

Link:
- This Is MedTech

Related blog posts:
- Coeliac Disease
- Gluten Free

Thursday, June 13, 2019

Eleven years gluten free

Today marks my eleven year Coeliac Anniversary - my Coeliacversary.


Eleven years ago today I was diagnosed with Coeliac Disease and began my journey into the gluten free world.


Coeliac Disease is a lifelong autoimmune condition, where the immune system mistakenly attacks healthy tissue. In Coeliac Disease the immune system mistakes substances found inside gluten as a threat to the body and attacks them. This can trigger a number of painful, horrible, stressful and uncomfortable symptoms.

My life as a Coeliac, in LEGO form
Why I avoid gluten at all times!

Having suffered from a range of symptoms for around ten years I finally received a positive diagnosis of Coeliac Disease following some 'interesting' and in-depth tests and procedures in 2008. It came as a relief to finally have a name for the mysterious cause of my illnesses and ailments, but at the time I was only given a brief summary and told that I'd have to "cut down on bread and beer". It was only later when I met with a Gastroenterologist and a dietitian that I found out that the only treatment for people with Coeliac Disease is a strict, life-long gluten free diet.

While having a life-long condition such as Coeliac Disease can be a pain - and horrible if I 'get glutened' - having the disease has had some positives. I've met great people since my diagnosis and have made some brilliant friends who I've met through Coeliac groups. I've also blogged a lot about living with the condition and the great free from food and drink I've found since 2008.

Thank you to everyone for their support, tips, help and recommendations over the years. It's been very much appreciated. I've also found some funny things about being a Coeliac along the way.

And a BIG thank you to Emily for all of her help and support throughout my struggles with the illness.

For more information on Coeliac Disease do check out the NHS Choices and Coeliac UK websites.

You can also view the very first blog post I wrote about gluten free / Coeliac stuff at 'Gluten Free Fish & Chips at Rossi's in Swansea'.

Sunday, November 18, 2018

A Gluten Free Buffet

A sorry sight indeed.

A Gluten Free Buffet
Yum

I suppose it's better than nothing. Good to see the rolls in separate packaging.

Related blog posts:
- Coeliac Disease
- Gluten Free
- Funny things about being a coeliac

Wednesday, June 13, 2018

Ten years gluten free

Today marks my ten year Coeliac Anniversary - my Coeliacversary.


Ten years ago today I was diagnosed with Coeliac Disease and so I began my journey into the world of all things gluten free.


I'm gluten free, not a glutton (or any number of other misspellings of gluten)

Coeliac Disease is a lifelong autoimmune condition, where the immune system mistakenly attacks healthy tissue. In Coeliac Disease the immune system mistakes substances found inside gluten as a threat to the body and attacks them. This can trigger a number of painful, horrible, stressful and uncomfortable symptoms.

My life as a Coeliac, in LEGO form
Why I avoid gluten at all times!

Having suffered from a range of symptoms for around ten years I finally received a positive diagnosis of Coeliac Disease following some 'interesting' and in-depth tests and procedures in 2008. It came as a relief to finally have a name for the mysterious cause of my illnesses and ailments, but at the time I was only given a brief summary and told that I'd have to "cut down on bread and beer". It was only later when I met with my Gastroenterologist and a dietitian that I found out that the only treatment for people with Coeliac Disease is a strict, life-long gluten free diet.

While having a life-long condition such as Coeliac Disease can be a pain - and horrible if I 'get glutened' - having the disease has had some positives. I've met great people since my diagnosis and have made some brilliant friends who I've met through Coeliac groups. I've also blogged a lot about living with the condition and the great free from food and drink I've found since 2008.

Thank you to everyone for their support, tips, help and recommendations over the years. It's been very much appreciated. I've also found some funny things about being a Coeliac along the way.

And a MASSIVE thank you to Emily for all of her help and support throughout my struggles with the illness.

For more information on Coeliac Disease do check out the NHS Choices and Coeliac UK websites.

You can also view the very first blog post I wrote about gluten free / Coeliac stuff at 'Gluten Free Fish & Chips at Rossi's in Swansea'.

Monday, December 11, 2017

98% gluten free

If something is 98% gluten free it's 100% useless to me.

The American Diner in Felixstowe is 98% gluten free
What a peculiar percentage to opt for, I wonder who their target market is?

Sadly there are very few 100% gluten free places for Coeliac diners. Cross-contamination with gluten containing food means that even 99% gluten free places are a big risk for people with Coeliac Disease.

The American Diner in Felixstowe is 98% gluten free
I've just noticed there's also a "98% GF" sticker on the door too

Thanks to Jo Tubby for the tip-off about the sign.

Tuesday, June 13, 2017

Celebrating nine years gluten free

Marking my Coeliac Anniversary - my Coeliacversary.

Nine years ago today I was diagnosed with Coeliac Disease and began my journey into the world of all things gluten free.

Coeliac Disease is a lifelong autoimmune condition, where the immune system mistakenly attacks healthy tissue. In Coeliac Disease, the immune system mistakes substances found inside gluten as a threat to the body and attacks them. This can trigger a number of painful, stressful and uncomfortable symptoms.

Richard Gottfried - Coeliac Crazy Golfer
I'm still alive and kicking as I've avoided gluten (my Kryptonite) since 2008

Having suffered from a range of symptoms for around ten years I finally received a positive diagnosis of Coeliac Disease following some 'interesting' tests and procedures in 2008. It came as a relief to finally have a name for the mysterious cause of my illnesses and ailments, but at the time I was only given a brief summary and told that I'd have to "cut down on bread and beer". It was only later when I met with my Gastroenterologist and a dietitian that I found out that the only treatment for people with Coeliac Disease is a strict, life-long gluten free diet.

I can't thank Emily enough for her help and support throughout my struggles with the illness. She's been bloody marvellous.

Playing at Strokes Adventure Golf in Margate
We've tried not to let Coeliac Disease get in the way of things and we're always keen to get out and about to explore new places and try different things. Check out this minigolf/gluten free/coeliac awareness crossover blog post for example

Working together we've plotted the minefield of 'going gluten free' and barring the odd 'explosion' along the way we've found what works for us. At home we're a Gluten Free Zone, however there are a lot of hazards when I venture outside the house. I've reached the point now that except for anywhere that can offer 100% gluten free food and zero risks of cross-contamination I've more or less given up on dining out. The last meal out we had together was in Leeds last December. Happily we've got a return meal at 2 Oxford Place booked for later this month.

I do often wonder how many manufacturers, retailers, restaurants and take-aways consider the impact selling gluten free products (or not) has on their bottom line? If I find somewhere offering gluten free options and no cross-contamination then I'm going to spend some money there (my Coeliac Pound if you will). Plus I'll tell other Coeliacs. A Coeliac will travel a long way to eat safely and with confidence.

While having a life-long condition such as Coeliac Disease can be a pain - and horrible if I 'get glutened' - having the disease has had some positives. I've met great people since my diagnosis and have made some brilliant friends who I've met through Coeliac groups. I've also blogged a lot about living with the condition and the food and drink I've found since 2008.

My life as a Coeliac. In LEGO form
Why I avoid gluten

Thank you to everyone for their support, tips, help and recommendations over the years. It's been very much appreciated.

For more info do check out NHS Choices and Coeliac UK.

You can also view the first blog post I wrote about gluten free / Coeliac stuff at 'Gluten Free Fish & Chips at Rossi's in Swansea'.

Related blog posts:
Coeliac
- Gluten Free
- Funny things about being a Coeliac

Links:
- Coeliac UK
- Coeliac Disease on NHS Choices

Monday, May 08, 2017

It's Coeliac Awareness Week

Coeliac Awareness Week is taking place from the 8th to the 14th May.


This week is Coeliac Awareness Week. Organised by national charity, Coeliac UK, the focus this year is on dining out gluten free. And being able to do so safely.

Coeliac Disease is a lifelong autoimmune condition, where the immune system mistakenly attacks healthy tissue. In Coeliac Disease, the immune system mistakes substances found inside gluten as a threat to the body and attacks them. This can trigger a number of horrible, stressful and painful symptoms.

The only treatment is to adhere to a strict lifelong gluten free diet. In the UK it's estimated that 1 in 100 people have the condition.

While more places are offering gluten free menu options it's unfortunate that they are not also controlling cross-contamination risks. As little as one crumb of bread is enough to do a whole lot of damage to the gut of someone with Coeliac Disease.

I was diagnosed with Coeliac Disease in 2008 and remember the years before when I could dine out quite easily. Now I barely ever do. The last meal I had out was last December at a 100% gluten free restaurant in Leeds.

I wonder how many manufacturers, retailers and restaurants consider the impact selling gluten free products (or not) has on their bottom line? If I find somewhere safe to eat then I'm going to spend some money there (my Coeliac Pound if you will) - and tell other Coeliacs to as well. Plus, I'll likely be dining out with someone else who is also going to spend money there.

For more information about Coeliac Disease and Coeliac UK's Awareness Week visit the Coeliac UK website. The hashtag for the week is #glutenfreevolution.

Over in the USA the whole of May is Celiac Awareness Month.

Link:
- Coeliac UK

Related blog posts:
- Coeliac Disease
- Gluten Free
- Funny things about being a Coeliac #9 - Menu disclaimers
- My life as a Coeliac in LEGO form
- What a perfect Crazy Golf obstacle for a Coeliac
- Gluten - my Kryptonite

Wednesday, August 26, 2015

Celiac Awareness Day 2015

Celiac Awareness Day is on 13 September.

The National Foundation for Celiac Awareness (NFCA) is the group behind Celiac Awareness Day, taking place on Sunday 13 September.

Coeliac Disease (Celiac in the US and Canada) is a lifelong autoimmune disease caused by intolerance to gluten and the only treatment is to adhere to a strict lifelong gluten free diet.

In the UK it's estimated that 1 in 100 people have the condition, in the USA the figure is 1 in 133.

It's important to know and remember that Celiac/Coeliac is NOT an allergy, it's NOT a preference, it's NOT a fad, it's NOT a diet, it's NOT an intolerance, it's NOT a choice - it's an AUTOIMMUNE DISEASE.

Richard Gottfried - Coeliac. Living gluten free since May 2008
I've been a Coeliac (and a Celiac when in the US) since May 2008

Visit the Celiac Central website for more information on their work and Celiac Awareness Day.


In the UK, Coeliac Awareness Week is taking place from 11 to 17 May. For more information check out the Coeliac UK website and the Awareness Week page. Last year I was Minigolfing gluten free in Margate during Coeliac Awareness Week.

Related blog posts:
- Read my Gluten Free Journey blog on the Udi's gluten free website
- Celiac Awareness Day 2014
- Coeliac UK Awareness Week 2014 and the Gluten-free guarantee
- Minigolfing gluten free in Margate
- What a Day, Week and Month! (2013)
Gluten Free
Coeliac
- Funny things about being a Coeliac

Links:
National Foundation for Celiac Awareness (NFCA) / Celiac Central
Coeliac UK

Saturday, July 04, 2015

The London Allergy and Free From Show 2015

A review of the The London Allergy and Free From Show 2015.

On Friday 3rd July I travelled to Olympia for the London Allergy and Free From Show. Last year was my first time visiting the event and I was interested to see what new products would be on show.

I was pleased to see some new gluten and wheat free ice creams available. On our recent two-week holiday around the south west coast of England I had only managed to find suitable ice cream tubs in two places! Fingers crossed the ice creams from Sweet Rebellion and Jollyum get stocked in more places as they were very tasty.

The Jollyum gluten free Ice Creams were very nice
The Jollyum Ice Creams were very nice

Earlier this year Emily visited Spain and brought me back some Sin Gluten goodies and so it was nice to see the team from Esgir at the show with their range of five gluten and wheat free products that are suitable for Coeliacs. I was so impressed that I bought some of the products.

A good haul from Esgir. I bought one of each of the products that include gluten free croutons, crunchy crumbs and choco snack sticks
A good haul from Esgir. I bought one of each of the products that include gluten free croutons, crunchy crumbs and choco snack sticks

I spotted some new gluten free beers from exhibitors including Estrella Damm Daura (with their new Märzen variety), the Wellington Bomber Porter beer from Glebe Farm, Outlook by Stringer's, and Hepworth & Co. While Green's have updated and refreshed its branding. I also got to try CELIA Lager's new Dark variety. Very nice it was too.

The brand new Märzen gluten free beer from Estrella Damm Daura. It tasted great
The brand new Märzen gluten free beer from Estrella Damm Daura. It tasted great

CELIA Dark was very nice. Martin from CELIA tells me it's a great beer to accompany autumn and winter meals too
CELIA Dark was very nice. Martin from CELIA tells me it's a great beer to accompany autumn and winter meals too

The updated branding on the Green's Gluten Free Beers range
The updated branding on the Green's Gluten Free Beers range

I enjoyed the new gluten free Wellington Bomber Porter from Glebe Farm
I enjoyed the new Wellington Bomber Porter from Glebe Farm

Check out my compilation blog post on all the gluten free beers, ales and lagers I've found since I was diagnosed with Coeliac Disease (the list currently stands at 89!).

Stringer's Outlook gluten free ale, one of the GF beers I'm yet to try
Stringer's Outlook gluten free ale, one of the GF beers I'm yet to try

It was also good speaking with the team from Can I Eat There? and finding out more about their allergy and intolerance aware restaurant listings and review website.

I did feel that too many of the exhibitors at the event were trying to sell sell sell, rather than doing something a bit different to engage with the audience. The show offers from Esgir were very good, while many other stalls were selling at not much less than a supermarket price. Couple this with the fact that it was baking hot, and while in London people may not want to carry around lots of shopping (including raw meat, or frozen products) so it would be really nice to see the brands trying something new.

Another thought is that because the show is catering to so many different audiences (all with their own varied needs - some lifestyle, some medical) there will be some clashes. This was evident in some of the exhibitors who I know have products that are not suitable for Coeliacs due to manufacturing processes and/or potential cross-contamination - but are labelled as gluten and wheat free. I think that if you're going to offer gluten and wheat free you should go 100%. No half-measures. Granted, there are people with wheat intolerance and non-Coeliac Gluten Sensitivity etc. who may be fine after consuming these products, but there is a larger proportion who won't be. It leaves a Coeliac like myself with a bitter taste, to be tempted with GF & WF packaging, only to be let down when reading the small print.

As a 'veteran' Coeliac I check, double check and then check again before I take a bite or a sip of anything. Having been glutened on a number of occasions I know it's not worth the risk, so I hope some of the rookie Coeliacs at the show didn't make any errors, or get carried away, in their sampling.

The next food fair I'll be visiting is the Home Counties Gluten Free Food Fair organised by the Herts & Mid Beds Coeliac UK Volunteer Group. Hopefully there'll be lots of new and interesting gluten and wheat free products on show and to sample there.

To round off a very pleasant day in London Emily and I had another brilliant gluten free meal at Honest Burgers.

Check out the Allergy Show London website for more information on the event.

Related blog posts:
Gluten Free
Coeliac
Funny things about being a Coeliac
- Home Counties Gluten Free Food Fair 2015
- The Allergy and Free From Show 2014 at Olympia
- Sin Gluten
- Gluten free beer

Links:
- Allergy Show London
Coeliac UK